HOSPITAL APPOINTMENT ROUTINE| SEATTLE CHILDRENS| GI SCOPE| HOSPITAL DAY|

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The Johnson Family
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Hospital appointments are never easy, especially when it's a GI Scope, and she has to be under anesthesia. Watch as we share our routine and the ways we get through these tough days.

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My sweet daughter Caliyah Joy was born with a rare syndrome called Pfeiffer Syndrome, which causes premature fusion of certain bones of the skull (craniosynostosis), affecting the shape of the head and face. You will see her overcome many obstacles and live life to the fullest despite her disability. If you are still wondering, what is Pfeiffer Syndrome? Well you can learn all about it here,
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SHOP THE JOHNSON CLOSET FROM TOYS TO CLOTHES
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