
CVID looks different for everyone, and that’s what makes it terrifying.
I live with CVID, a rare immune deficiency that most people don’t understand, and even fewer talk about. I don’t always have the strength to speak, let alone sing. I was in a coma for two months. My immune system was already fragile from CVID, and that almost took everything. This song isn’t just about awareness. It’s survival in melody form. So I made this song to give my pain, my story, and our struggle a voice, even if it’s through AI.
“What You Don’t See” is for anyone living with an invisible illness. It’s for the ones who feel forgotten, misunderstood, or silenced by their body. It’s not just my story… it’s all of ours.
I don’t want pity, just awareness.
If this song hits your heart, share it. Let someone else know they’re not alone in the silence.
💉 With love,
— Lu
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