Only 13 People Have Her Condition #shorts #FontaineProgeroidSyndrome #RareCondition

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Only 13 People Have Her Condition #shorts #FontaineProgeroidSyndrome #RareCondition

Kenzie is a 26-year-old influencer and one of only 13 people in the world living with Fontaine progeroid syndrome. On TikTok, where she has over 680,000 followers, she shares get-ready-with-me videos, cooking content, and glimpses into her daily life while expressing her Christian faith. She credits her faith for her survival against doctors’ expectations. Kenzie’s skull structure prevents her from wearing hair extensions at the top of her head. She hopes her unique appearance inspires others to embrace their look.

As FPS is incurable, she faces ongoing health challenges that currently prevent her from working. Kenzie is married to Noah, has two stepchildren, and they are considering having a biological child together. Through her faith, family, and authenticity, she demonstrates that true beauty comes from embracing oneself fully.

#FontaineProgeroidSyndrome #FPS #RareCondition #GeneticDisorder #RareDiseaseAwareness #ChronicIllness #UniqueAppearance #Inspiration #FaithAndSurvival #TikTokInfluencer #HealthChallenges #RareDiseaseCommunity #LivingWithFPS #ProgeroidSyndrome #SelfLoveJourney #FamilyAndFaith #OvercomingOdds #RareConditionStory #Authenticity #ChronicIllnessAwareness

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