Finding your community is so important! It allows you to be seen, appreciated, and included. Well my girl had that this weekend. When you have a rare syndrome it's even harder to find people who look like you and understand your lived experiences..
The @ccakids Family Retreat brings hundreds of children & adults who have a facial difference and their families together. They had a special session with over 25 Pfeiderer Syndrome families and my girl could not stop smiling from the moment she walked in.
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